Catalyst Pharmaceuticals to Launch LEMS Aware Podcast on Rare Disease Day 2022
Gregory said, “It is critical that rare disease patients do their own thorough research and be self-informed, a process that benefits from rare disease-focused awareness campaigns. Becoming a patient advocate has been a big part of my LEMS journey, and I am quite passionate about it. The process of helping others in the community is exceedingly fulfilling to me.”
Wooldridge added, “Understanding the challenges of living with a rare disease is a key step to overcoming them, a comprehension that comes from rare disease education. Many times, people do not understand your daily struggles unless they are living with you. I want to educate the community about LEMS and be a guide for those who are beginning their LEMS journey. Awareness and education are the most critical ways we can inform others about rare diseases and their challenges.”
Rare Disease Day was created to raise awareness about rare and ultra-rare conditions among the public and decision-makers in industry and government with the goal of improving treatment options and access and medical representation for impacted patients and their families. Efforts taken on this day and throughout the year are intended to increase funds, research, resources, and treatments for the rare disease community. Despite recent progress, only about 5% of the more than 7,000 identified rare diseases currently have an FDA-approved treatment.
“We are steadfast in our goal of educating the community and arming them with tools that will facilitate the perception of their diagnosis,” said
Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disease of the neuromuscular junction that affects the signals sent from the nerve to the muscle. A miscommunication between the nerve cell and the muscles leads to the progressive onset of muscle weakness. About half of LEMS cases occur in middle-aged or older people with lung cancer. Depending on the severity of symptoms, LEMS can impact patients’ quality of life affecting their ability to engage in daily activities.
To be notified when the first episode is available, sign up at https://www.lemsaware.com/stay-informed. Additionally, the podcast will be available on Apple Podcasts, Spotify, Google Podcasts, and Amazon Music on
This press release contains forward-looking statements. Forward-looking statements involve known and unknown risks and uncertainties, which may cause Catalyst's actual results in future periods to differ materially from forecasted results. A number of factors, including those factors described in Catalyst's Annual Report on Form 10-K for the fiscal year 2020 and Catalyst's other filings with the
Source: Catalyst Pharmaceuticals, Inc.